The Calm 🦁 And Rett Syndrome Shorts

Richard Engel, the head foreign reporter for NBC News, said on Thursday that his son Henry, age 6, had passed away. The battle the youngster endured with a rare genetic disease had been openly discussed by Engel and his wife. Henry, our cherished son, died, Engel posted on Twitter. He had easy grin, easy laugh, and the sweetest blue eyes. He was always surrounded by our love, and he gave it back in spades. According to a memorial to Henry on the Texas Children"s Hospital website, who was born in September 2015, his parents first noticed he wasn"t meeting developmental milestones when he was just a baby. Doctors discovered he had a mutation in his MECP2 gene through a genetic test. Rett syndrome is caused by the mutation, a The hospital described the condition as a disorder that typically strikes females after their first birthday, depriving them of learned abilities and leaving them with cognitive deficiencies, loss of speech, and a variety of movement issues.\nSince 2018, Henry had received care at the Duncan Neurological Research Institute of Texas Children"s Hospital. Dr. Huda Zoghbi of the institute, who examined Henry"s mutation, described him as unique in so many ways.\nIn a statement, Zoghbi said, His warm and adorable grin and the way he connected with his eyes captured my heart from the time I met him. It was amazing to watch him battle this dreadful disease in silence. The influence Henry had on so many of us at the Duncan NRI and on our Rett research is, however, what is most astounding. We"ll keep working as hard as we can to develop cures. We will remember his life in this manner. Engel stated this in an another tweet on Thursday: Researchers are making fantastic progress using Henry"s cells to help treat RETT Syndrome so that others don"t have to suffer from this dreadful condition. Over the years, Engel has provided updates on Henry, writing essays in 2018 and 2019 on the family"s triumphs and heartbreaks. Engel revealed that he finally got a "Dada" from his son in a subsequent piece. It took a while, which just made it sweeter and made it an unexpected reward, he wrote. Engel tweeted a video of Henry at the end of May, stating that he had aken a turn for the worse.\n His condition worsened, and he eventually got dystonia, or uncontrollable stiffness and shaking. He spent six weeks in the hospital, but is currently recovering at home with help from brother Theo. Track: James Roche - Away [NCS Release] Music Provided By: NoCopyrightSounds. Watch: https://youtu.be/fjHq4M8wpSI Free Download / Stream: https://ncs.io/JRAway I apologize for Part 4 has corrupted footage it was because of my editing software.


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